I wish I still had my "Hate Book" going, god, remember those things? What a great place to vent. I was reminded of mine yesterday when working with a girl at my school. Her and her BFF have a note book they pass back and forth. In this age of high tech, it made me smile to see something so simple alive and well.
I wish I had my hate book because I would fill it daily with all thereasons I hate Celiac Disease. I hate it. I'm not even the one who has it and I hate it. I just realized this week that Ava can't play with Play Doh anymore, it's "secret ingredient" according to Hasbro is of course flour. I knew that, but wasn't thinking about it till Ava kept getting sick and I couldn't figure out what was glutening her. Freaking Play Doh! I had to order really expensive gluten free play doh to stock preschool with and a mat for her to play on so her safe play doh doesn't touch the poision play doh. Poision. That is what it is to her. Damages her insides, turnes her behaviorly into a monster. I can't believe what it does to her. Never in a million years would I imagine food could do this to a person.
I hate that she will never be able to go get a "slice and a soda" after school when she is a teen. Our sports teams always do spaghetti dinners in the fall. It's a tradition at my school. If she is playing field hockey or soccer, something so fun and simple, will be a pain in the ass for her. I hate that we can't go to the Applebee's fund raiser this sunday for the girls cross country team. A simple pancake breakfast. Nope, not happening. I hate that we can't go out to eat, or grab something in a hurry. Everything has to be planned in advance. I can't run out of gluten free food, cause there's not much available locally. I hate that slumber parties will be different for her. I hate that when it's cupcake days at school for kids birthdays, she will have to bring her own. That sucks. Big time. I hate that she won't be able to buy lunch at school. There is hardly anything there she can safely have. And college. That's something I think about. The dinning hall.
Mostly I hate all the normal things she can't participate in. I hate that her risk of certain GI related cancers is very high for her. Gluten destroys villi and healthy stomach homeostasis, cheating on the diet is not an option for her. Keeping on it 100% of the time is really tiring.
I hate it. I know it could be worse, but I still hate it. I told you I could fill a book.